New website - coming this week
We have been busy preparing our new website to replace this existing site. The new site has a fresher look, is easier to use and offers new levels of accessibility. The information has been simplified and it’s easier to find the help you want.
As well as providing useful information for the community we have introduced a new section called ‘Share Your Story’. The new section highlights personal stories of people living with hepatitis as well as stories from people who have cured hepatitis C. We will also be encouraging others to submit their stories to share with others. Personal stories offer important insights into the journey of living with a chronic condition like hepatitis. Understanding the challenges and triumphs people experience helps to challenge and demystify some of the myths, stigmas and the discrimination that occurs but also inspires others to take action and in some situations lead to someone being cured of hepatitis C.
We have also revised sections for people working with people affected by hepatitis B and C. This has been divided up into the community based workforce and professionals, such as clinicians researchers etc.
The new site will be live in a couple of days. As the site will still be located at hepatitisaustralia.com you will need to refresh you browser or clear the cache if the site does not initially display correctly.
Save the Date: Test Cure Live Meeting @ AVHEC 2019
Hepatitis Australia will be conducting a breakfast meeting on the first day of the Australasian Viral Hepatitis Elimination Conference in August. The AVHEC conference, which runs over the 5 - 6 August is a biannual meeting with a specific focus on the elimination of viral hepatitis. The Test Cure Live meeting is open to register conference delegates and will highlight the outcomes of the recent campaign implementation in Adelaide and Canberra.
Places for the Test Cure Live meeting are limited so please send an email to email@example.com to register.
Help fight stigma and discrimination
If you are over 18 and living with or have previously had hep C in Australia, tell us about your experiences of living with hep C.
The Centre for Social Research in Health at UNSW Sydney is seeking people who have had or are currently living with hepatitis C to take part in a 15 minute online survey about experiences of hepatitis C, including treatment, community, wellbeing, stigma and discrimination.
Uptake of new hepatitis C treatment.
The Kirby Institute is releasing regular reports on the number of people initiating treatment for hepatitis C, using the new generation medicines. The new generation medicines became available on the Pharmaceutical Benefits Scheme (PBS) from 1 March 2016. The reports show the estimated number of people commencing the new medicines generation medicines to treat and cure hepatitis C. The reports are available for download here or you can view the latest report by using the button below.
Stigma stops the majority of people living with viral hepatitis enjoying the quality of life they deserve. From social exclusion and inferior healthcare to denial of employment opportunities and verbal assaults, stigma and discrimination stop people living with viral hepatitis from fulfilling their potential.
According to a new report published by the World Hepatitis Alliance, more than 90% of countries surveyed reported stigma and discrimination to some degree.
Almost 3 in 4 respondents suffer from self-stigmatisation
Over half of respondents have been socially isolated
1 in 2 people have experienced unjust barriers to healthcare
42% have lost out on job opportunities or income
The report entitled “Holding Governments Accountable: World Hepatitis Alliance Civil Society Survey Global Findings Report” found that stigma not only affects an individual’s ability to access diagnostics and treatment but also impacts their personal life, mental health and ability to work, learn and maintain relationships. Yet, despite this, very few respondents felt that their government was effectively addressing it on a national level, making stigma and discrimination a significant barrier to the elimination of viral hepatitis.
As a community, we must come together to challenge misconceptions and be empowered to act on violations.
Hepatitis Australia is a charity registered with the Australian Charities and Not-for-Profit Commission. Please contribute to our aim of a world without viral hepatitis by making a tax deductible donation. Find out more
Hepatitis Australia is a non-government, not-for-profit organisation that became incorporated in 1997. We do not provide services to individuals. To locate hepatitis services in your area visit the services page or call the Info line on 1300 437 222. Our members consist of the state and territory hepatitis organisations and other key services providing hepatitis services.
Page updated: 04 June 2019